EA – refers to Earthly Angels.  A few years ago when on our forum, Theresa, precious Donny’s Mom stated that both families of CDH Angels and Children who survive CDH were all survivors.  We agreed and at her suggestion started calling the survivors of CDH, Earthly Angels (EA) and the children who decided that wings would be more fun Heavenly Angels (HA).

This page is for General Resources for Earthly Angels and their families.  Please feel free to contact us if you have any suggestions for us or any of the links are not working!

Government Resources for Families (Income may not be a factor)
http://www.govbenefits.gov/govbenefits_en.portal/

Partnership for Prescription Assistance
http://www.pparx.org/

PAGER Organization is a nonprofit organization that provides information and support for families and doctors about Gastroesophageal Reflux (GER)
http://www.reflux.org/reflux/webdoc01.nsf/(vwWebPage)/AboutPager.htm?OpenDocument/

Yahoo Group Supporting Caregivers of Children with Eating Disorders
http://health.groups.yahoo.com/group/feeding/

KCRC Feeding Program
http://www.hsc.virginia.edu/internet/pediatrics/kcrc/feeding.cfm

Alexander Graham Bell Association for the Deaf and Hard of Hearing
http://www.agbell.org/DesktopDefault.aspx/

John Tracy Clinic – Resources for Parents, Infants and Toddlers with Hearing Loss
http://www.jtc.org/

Scoliosis Research Society
http://www.srs.org/professionals/education/tis/veptr.php/

MedicAlert Bracelets
http://www.medicalert.org/Home/homegradient.aspx/

Center for Disease Control – Tracking Flu and RSV
http://www.cdc.gov/

US National Library of Medicine and the National Institutes of Health (a search engine for summaries of Medical Studies)
http://www.ncbi.nlm.nih.gov/sites/entrez/